Monday, April 19, 2010

Sweet Hannah

Sweet Hannah

Hannah and Nathan at about 2 1/2 yrs.

Hannah and Nathan at a year old.

My dear friend and best friend from college ,Krissy ,lost her little 4yr.old girl, Hannah Wilkins, a few days ago. I cannot fathom the pain and heartache they must be experiencing and how bad they must miss her. Please join me in praying for their family.

Her Obituary is below:

Hannah Leigh Wilkins was born on January 30th, 2006. Hannah is a Hebrew name that means grace or gift from God and throughout the brief four years God gave us with her she was a constant reminder of the sweet mercy of Christ. God made her without a right ventricle and with a coronary condition that caused her to need a transplant when she was only 4 months old. Overcoming obstacles only God could enable, she received a new heart on Glenn’s birthday after a 37 day wait…truly not a coincidence. For three years Hannah lived an extremely full life and outside of regular checkups, lab work, and biopsies, a very normal life as well. In December of 2009 Hannah became very sick and was diagnosed with a type of lymphoma called Post Transplant Lymphoproliferative Disease (PTLD). After being in and out of the hospital for next five months, on Friday, April 16th God mercifully took her home to be with Him. Hannah is survived by her parents Glenn and Krissy Wilkins, brother Manny, sister Abby; Grandparents Don and Pam Wilkins and Joel and Sandi Thomas, Uncles and Aunts Chris and Rebecca Wilkins, Sean and Joey Meyer, Michael and Sarah Torrance; and a host of friends who have loved her in ways words cannot express.

The Family requests dear friends and family who want to help to NOT send flowers, but rather a memorial to the Hannah Wilkins Transplant Fund to 808 Eisenhower Dr. Augusta, GA 30904.

Visitation will be held at Platt’s Funeral Home on Crawford Avenue from
6-8 p.m. on Tuesday April 20th.

The Funeral will be held on Wednesday April 21st at First Presbyterian Church at 11 am at 642 Telfair Street Augusta, GA 30901.

Friday, April 9, 2010

oh yummy food...

I must share that though i thought my normal diet did not make a difference in Jude...I was very wrong. It is sad to say that dairy, chocolate , soy , caffeine and eggs just make his issues that much worse.I am still trying to pin point if it is soy and eggs too! So, my professional assessment is that he cannot digest these his tummy must not be very developed yet. His normal fussy nights have been unbearable since i added dairy and my favorite: chocolate. I really wish since i was changing my would fix ALL his issues! Yet, it is worth it to change my diet...his screaming has modified to whimpering and squirming. Sometimes i feel so bad for him- like it is just mean to not just switch to a pre-digested formula- but i am hoping he will be able to tolerate these in the next few months. It has been really good for me to have to exercise discipline in my eating....though i am constantly hungry and crave a warm brownie with ice cream and hot fudge. I guess i know what i will be eating to celebrate his first birthday!

Monday, April 5, 2010

Jude at 2 months old!

His Stats-
Weight: 13lbs. 11 oz.- 80%
Height: 24 3/4 inches- 95%

Another big baby! This is the funny akward stage to me...when they are fat and starting to loose hair. He is so sweet though... when he feels good! To update you on the tummy issues: no new improvement. I did the elimination diet for 5wks and it didn't help- i couldn't pin point anything. I have been adding back things in my diet and i never new macaroni and cheese and chocolate cake tastes so good. I didn't notice any change as I added them back in! My pediatrician still thinks he cannot digest some sort of protein...even though we have eliminated them all. He said we could try the pre- digested formula like we did with Naomi- but it really didn't help her! He thinks these tummy issues are hereditary and as his tummy matures he will be able to digest better. We decided to wait it out - b/c i am not convinced the formula will help and I really want to keep nursing! We have him on some stomach cramping drops that seem to help some and will probably try cereal at 3 months to see if that is easier to digest.
We are surviving though...though we are up a lot with him- when his stomach calms down he immediately goes back to sleep. He really does want to sleep... so i feel so sad for him. It doesn't seem as bad as it was with Naomi- but i am not sure if it is b/c we are more used to it. He is starting to smile and coo some...and it gives us a glimpse of the happy baby he will be soon.

Easter 2010

This was a sweet Easter....The kids are starting to pick up on the meaning more and more. We gave them a new CD( seed family worship- scripture songs- really good and not cheesy if you are looking for good music), some jelly belly's and a pack of seeds. It was fun to try to explain new life to them!

Our attempt for a family picture...about as good as we could get this year!

Nathan and Naomi before church...never can time a picture when they are all 3 available!

Jude- Sweet as can be....slept right through the hunt!

Nathan- took egg hunting quite seriously!

Naomi- Typical girl...just enjoying the experience!

Cousin Jacob- Pretty sure he would be the winner...just don't tell Nathan!

Cousin Will- he was too interested in the mower to actually hunt!

This is a video of our annual family egg is getting more competitive!

Friday, April 2, 2010

Pre- Easter Festivities

Our Church has an annual Easter Egg Hunt at a church members home and it is definitely a highlight. My kids are always the ones that end up with 5 eggs- mostly b/c I am worried for them and fight the "faster" kids for them. The really just enjoyed the experience. Also, we were able to dye eggs- which they loved. I don't know why I attempted it on a night that Eric was gone and Jude was fussy to say the least. Nathan and Naomi loved it- and I just had to die to my vision of multi-colored eggs with fun designs and just let them dye the eggs and put stickers on them. I hope they are getting the point of this sugary holiday! video